Tuesday, February 22, 2011

Cardiac Cath, Solids and Sleep!

Hi Everyone,

I had my cardiac catheterization last Tuesday and it went great! Dr. Balzer said everything looked good and that they could go ahead and schedule my Glenn at my next visit! It was a very long day at the hospital and we had to go for a few hours on Monday to get our instructions and a chest x-ray for Tuesday. Mom and dad actually woke me up at 1:30am because it was the last time I could have a bottle of milk before my cath. The only thing I could drink after that was pedialite and apple juice - ick. We got to the hospital bright and early on Tuesday and I met my awesome nurse, Heather! They took me pretty quickly into the cath lab to get started and I was back in my room in 7 West in about 3 hours. I got to sleep the rest of the afternoon and Dr. Balzer showed my mom and dad a video of my cath - pretty cool! He said everything looked good - no collateral veins had formed in my lungs and I only had a slight kink in my aorta that didn't need fixing and my pressures all looked good! We were very relieved to get such great news! We finally got to go home about 4:30pm but we made sure to stop by and visit with some of our favorite nurses - Andrea, Ali, Megan, Dora - and our RT Sheila! I was really exhausted and had some trouble sleeping that night, and I also threw up a few times which was awful! They warned us that I could be a little sick from the anesthesia. Luckily mom and dad watched me closely and were there to make sure I was okay. I think I got a little more sleep than they did but we were all pretty tired on Wednesday. So now I have to go back in early March to see Dr. Balzer and he said at that point they'd be able to schedule my next surgery - yikes! I know it is going to be just fine, though, and one of my Children's buddies, Jace, just made it successfully through his Glenn so he is a big inspiration to me!





In other news, I've been eating rice cereal, oatmeal, sweet potatoes and bananas! Yes, I know, I am such a big boy to be eating solids! I really like the taste but I am still trying to figure out how to eat and swallow without getting food all over myself. I think I still like my bottle the best, but these solids are pretty tasty! I also rolled over onto my stomach today! My nanny Annie was there to watch me and told my mom when she got home. I've been so close to rolling over for a few weeks now and I finally made it! So now, unfortunately, mom and dad have to figure out how to keep me sleeping at night without being swaddled - it's going to be quite a challenge. Ever since my cath, my sleeping has been a little off and I am waking up quite a bit in the early morning. I don't mind it too much because I can just make a few noises and then mom and dad run in to give me my pacifier and I fall right back to sleep. I think mom and dad are getting a little tired of my new habit, though, because they talk about inventing a pacifier that will stay in my mouth :) They also suspect that I may be in the early stages of teething because I really like to chew on my hands and mom's fingers and arms - I guess they'll just have to stay tuned!

So that's what's going on in my exciting baby life for now! Talk to you soon!


Love,

Will

Friday, February 11, 2011

Be my Valentine!


Hi Everybody! It's been a while since I've posted and I'm sorry for keeing everyone hanging! I have been super busy getting big and learning lots of new things! I got weighed today and am 15 lbs, 4 oz! Holy cow, I am a big boy! I had to get two shots today too, one in each leg, OUCH! It is something called Synegis which is going to help keep me healthy, but I sure don't like getting shots! Angie, the nurse who comes to visit me is super nice and gives me the shots as fast as she can so it really doesn't hurt for long...plus I am a really tough guy so I barely cied (well maybe just a little). I am a little over 4 months old now and mom and dad did another annoying photo session. Right now my favorite thing to do is put my hands in my mouth so I made it pretty hard for them to get lots of good pictures (ha ha!)
I have big plans for my first Valentine's Day - I am going going to have my cardiac catheterization at Children's that day! I'm going Monday for a pre-visit and then I'll be there all day Tuesday for my cath. I'm a little nervous to be going back to the hospital but I will have mommy and daddy with me so I know it'll be okay. I'm also hoping to see some of the wonderful doctors and nurses that took care of me when I was in the hospital back in October and November! I'll let you all know how it goes!

Love,

Will


Oh and here's a video of me talkng to mom!